The Barcelona Institute for Global Health (ISGlobal) is a cutting-edge institute addressing global public health challenges through research, translation into policy and education. ISGlobal has a broad portfolio in communicable and non-communicable diseases including environmental and climate determinants, and applies a multidisciplinary scientific approach ranging from the molecular to the population level. Research is organized in five programs: Climate, Air Pollution, Nature and Urban Health; Environment and Health over the Lifecourse; Global Viral and Bacterial Infections; Malaria and Neglected Parasitic Diseases and Maternal Child and Reproductive Health. ISGlobal is accredited with the Severo Ochoa distinction, a seal of excellence of the Spanish Science Ministry.

e-QuoL (e-Health tools to promote Equity in Quality of Life for childhood to young adulthood cancer patients after treatment/survivors and their families) is a European-funded project that aims to provide children, adolescents, and young adults who have survived cancer with e-health tools designed specifically for and with them to help them manage their health. It is funded by the European Union under Horizon Europe (Grant Agreement No. 101136549) and runs from January 2024 to December 2027. The project is structured around eight Work Packages (WPs). A key deliverable is MyCaree-QuoL, a digital personalized supportive care application that will supplement existing survivorship care passports. MyCaree-QuoL will provide young cancer survivors with tailored recommendations on long-term health risks, recommended screenings, psychosocial support, and self-management strategies. The app will be available in multiple languages and will be evaluated through a prospective clinical study conducted in at least six European countries (France, Spain, Italy, Hungary, Germany, and Norway), involving 240 childhood, adolescent, and young adult cancer survivors (CAYACS).

WHAT WE ARE LOOKING FOR

ISGlobal is seeking a motivated and experienced Patient Advocate / Patient Expert to join the e-QuoL project team. The successful candidate will bring the authentic voice and lived experience of young cancer survivors into the heart of the project, ensuring that the clinical study, the MyCaree-QuoL digital application, and all project communications genuinely reflect the needs, preferences, and priorities of the population the project serves. This is a unique opportunity to shape a pan-European digital health initiative from the inside, contributing meaningfully to improving long-term follow-up care for thousands of young cancer survivors across Europe.

KEY RESPONSIBILITIES

• Clinical Study Support and Patient Representation: Ensure that the perspectives, priorities, and lived experiences of young cancer survivors are fully and meaningfully integrated into the design, implementation, and evaluation of the e-QuoL clinical study, including active support in its implementation at Hospital Clínic Barcelona.

• Digital Tool Co-creation and Usability Input: Actively participate in the co-creation and iterative refinement of the MyCaree-QuoL digital personalized application. Provide expert patient insight on features, content, user interface design, and overall usability to ensure the tool is accessible, emotionally supportive, and genuinely addresses the real-world challenges of young cancer survivors across diverse European contexts.

• Communication and Dissemination Material Review: Review, validate, and co-create project communication, dissemination, and policy materials — including newsletters, social media content, policy briefs, etc. Ensure that the language used is appropriate, non-stigmatizing, empowering, and accessible to the intended audiences (survivors, families, healthcare professionals, and policymakers). Advise on the most effective communication channels to reach young cancer survivors and their support networks.

• Policy and Advocacy Engagement: Contribute to the development of policy-relevant materials and advocacy messages that highlight the importance of equitable, person-centered long-term follow-up care for young cancer survivors in Europe. Support the project's alignment with key European health policy frameworks, including Europe's Beating Cancer Plan.

• Consortium Engagement and Knowledge Sharing: Represent the patient community credibly and constructively within the e-QuoL consortium, contributing to meetings, workshops, and working groups. Share insights and feedback from the broader patient community to inform project decisions and ensure the project remains grounded in real-world patient needs throughout its lifecycle.

SPECIFIC DUTIES

• Participate in co-creation workshops and regular consortium meetings (online and in-person), providing expert patient insights.

• Review clinical study documents — including informed consent forms, participant information sheets, questionnaires, and follow-up materials — for clarity, readability, emotional sensitivity, and patient-friendliness.

• Test and provide detailed, structured feedback on the MyCaree-QuoL app features, user interface, content, and overall usability during the development and evaluation phases.

• Advise the WP7 (Communication, Dissemination, and Exploitation) team on the most effective communication channels to engage young cancer survivors and their families.

• Collaborate on the development of impactful policy briefs, newsletters, awareness campaigns, and other dissemination materials, ensuring language is appropriate and channels are optimal.

• Contribute to the Ethics Reflection Group and Social Challenge Group activities, ensuring patient perspectives are represented in discussions on data privacy, equitable access, and the social challenges faced by CAYACS from diverse backgrounds.

• Provide input on the development of training materials and resources for healthcare professionals to better support young cancer survivors in long-term follow-up care.

• Represent the e-QuoL project at relevant patient advocacy events, conferences, and stakeholder meetings as appropriate.

AUXILIAR TASKS

This job description reflects the present requirements of the post but may evolve at any time in the future as duties and responsibilities change and/or develop providing there is appropriate consultation with the post-holder.

This job description is not a definitive or exhaustive list of responsibilities but identifies the key responsibilities and tasks of the post holder. The specific objectives of the post holder will be subject to review as part of the individual professional assessment process.

SKILLS

• Empathy and Patient-Centricity: A deep, authentic understanding of the cancer survivor journey —including the physical, psychosocial, educational, and social challenges — and the ability to translate this understanding into actionable insights for the project team.

• Teamwork and Collaboration: Ability to work effectively and constructively within a large, multidisciplinary, pan-European team, respecting diverse professional backgrounds and cultural contexts.

• Problem Resolution: Capacity to identify potential barriers in patient engagement, communication, and digital tool usability, and to propose practical, patient-centered solutions.

• Learning Capacity: Willingness and ability to understand complex clinical study designs, digital health frameworks, and research methodologies, and to apply this understanding to improve patient involvement in the project.

• Effective Communication: Ability to articulate the patient perspective clearly, constructively, and persuasively in both written and verbal formats, adapting communication style to different audiences.

• Advocacy and Influence: Confidence and credibility to advocate for patient-centered approaches within the consortium and in external policy and dissemination contexts

The post holder will adhere to ISGlobal principles contained in People management policy, including Equity, diversity and health safety. The post holder will respect, and be accountable to ensure ISGlobal policies and procedures.

TRAINING AND EXPERIENCE / QUALIFICATIONS

• Lived experience as an adolescent or young adult cancer survivor (CAYACS), or extensive, demonstrable experience as a dedicated caregiver or advocate for this community. This is considered an essential and defining qualification for the role.

• Experience in patient advocacy, patient engagement, or Public and Patient Involvement (PPI) within clinical research, academic research, or healthcare policy contexts.

• Familiarity with clinical study processes, including the review of study protocols, informed consent forms, and participant-facing materials.

• Understanding of digital health tools — including mobile health applications (mHealth), e-health platforms, and survivorship care passports — and their role in supporting long-term follow-up care for cancer survivors.

• Experience in reviewing, editing, or co-creating communication, dissemination, or policy materials for diverse audiences, including patients, families, healthcare professionals, and policymakers.

• Good command of written and spoken communication skills in English (the working language of the project).

• A relevant educational background (e.g., health sciences, social sciences, communications, or related fields) is desirable but not required if the candidate demonstrates equivalent experience through their advocacy work.

SPECIFIC REQUIREMENTS

• Deep, authentic understanding of the psychosocial, educational, and medical needs of young cancer survivors and their families, informed by personal or professional experience.

• Ability to provide constructive, actionable, and evidence-informed feedback on clinical study protocols, digital app interfaces, and patient-facing materials, with a focus on accessibility, clarity, and emotional appropriateness.

• Proactive, empathetic, and collaborative mindset to work effectively within a large, multidisciplinary, pan-European consortium.

• Cultural sensitivity and awareness of the diverse healthcare landscapes, languages, and patient experiences across Europe.

• Ability to represent the patient community credibly and confidently in consortium meetings, workshops, and external events, including online and in-person settings.

• Comfort working in a hybrid or remote environment, with the ability to manage asynchronous communication across multiple time zones and institutional cultures

LANGUAGE LEVEL

• Proficiency in Catalan, English, and Spanish.

CONDITIONS

• Duration: 12 months

• Starting date: 02/05/2026

• Contract Type: Part time

• Salary: According to ISGlobal internal salary scale

HOW TO APPLY

Applicants must fill in the request form and attach the CV and a Cover Letter. Each attached document must be named with the candidate name and surname.

The receipt of applications will be open until 17th of April 2026.

The interviews could be placed during the reception of candidatures period.

Diverse candidatures are encouraged, that includes: gender, race, ethnicity, religion, age, sexual orientation, physical abilities, and political views.

SELECTION PROCESS

The selection process is designed in two phases:
1- Interview phase of a technical nature, with the team that requires the incorporation. To assess the person's skills and CV.
2 - Meeting with HR with the finalist(s) to finish assessing the profile and discuss contractual and institutional issues.

If needed any technical test could be passed. A Psychological Competency Evaluation Test will be required for the structural or transversal positions.

In accordance with the OTM-R principles, a gender-balanced recruitment panel is formed for every vacancy at the beginning of the process. After reviewing the content of the applications, the panel will start the interviews, with at least one technical and one administrative interview. A profile questionnaire as well as a technical exercise may be required during the process.

In ISGlobal we are committed to maintaining and developing a work environment in which the values and principles of our organization are respected and equal opportunities between women and men be promoted in each of the areas in which we operate, not tolerating discrimination based on criteria such as age, gender, marital status, race, ethnicity, functional diversity, political leanings, religion, sexual orientation, gender identity or gender expression.

We confirm our commitment towards the value of the diversity of our staff and student population and seek to promote peace, equity, diversity and inclusion as essential elements in contribution to improving health worldwide.